Dear World, I quit.

Dear World,

I quit.  I quit taking on all of the burdens of my family, friends and co-workers, while I slide deeper and deeper into the mud of my own anxiety without anyone pulling me out or lifting me up, or even noticing.  I quit allowing my needs and wants to not be met in relationships, whether with my husband, my family, or friends.  My needs are not second to yours.  I quit not putting myself first.  If I don’t ever put myself first, I will always be last.  While that’s been ok for 34 years, it’s not ok anymore.  I quit yielding my schedule to those around me.  Your schedule is not more important than mine.  My schedule always involves at least two other people.  My schedule trumps yours.  It is fixed and unvarying.  You can figure it out.  I quit allowing others to tell me what I need to do.  I’ll go to therapy when I’m ready, and to the therapist of my choice.  If I need a glass of wine or a muffin laced with a generally giving substance to calm down at the end of my day until then, then that’s ok.  If I need to pull all of the weeds out of the flower bed, or practice for two hours in the evening to calm down, that’s ok too.

I have a two year old, a husband, a demanding job, a time consuming friend, all of which are male.  I quit having men govern my life.

I quit apologizing for being weird.  I have an eccentric taste in music.  I have an eccentric taste in most things.  I’m not particularly friendly most of the time, and I hate emotions.  Crying is overrated.  I quit apologizing for feeling that way.

I quit not being me.   I am weird, and analytical, smart, and decisive.  I have a lot to offer the world, and I’m tired of nobody seeing that.

Dear World, I quit.  And you’re just going to have to deal with it.

Defying the American Standard for myself

Yesterday, I came across an article on the NY Times, that for the life of me I cannot find again, that talked about how millennials had these big dreams of a 3 bedroom house with a picket fence and 2.5 children, but how we aren’t actually doing that.  After getting into an argument on Facebook with someone clearly trying to poke the fire (I should have known better), it encouraged me to think about my own life.

My husband and I are lucky-ish.  Neither one of us have fantastic incomes (we get by fine), but as he comes from a wealthy family, he had a townhouse purchased for him upon college graduation.  We lived in the townhouse, mortgage free, for 5.5 years of marriage.  After the birth of our son, we took out a modest home equity line of credit, and had some updating done.  We then used the equity in our townhouse to finance a bridge loan, bought a house, sold the townhouse.  The equity in the townhouse was a fantastic down payment, so while having a mortgage was definitely an adjustment, it’s also definitely doable.  No picket fence, but it’s our own little square of land.

True to the American standard, we had planned on having two kids.  The original plan was having one and reevaluating, but we both knew we really did want two kids.  After trying for about 7 months, I got pregnant.  At 6 weeks on the dot, I began daily all day sickness that lasted well into my 20th week.  The list of foods that I couldn’t eat far exceeded the list of what I could actually digest.  My body was not excited at all about being pregnant.  I also had a bad taste in my mouth which lasted into the 16th week.  Everything tasted bad, in addition to being violently ejected frequently, and no amount of toothpaste could get rid of the taste.  It was hormonal, totally me, and my husband could neither smell nor taste a difference in me.

As I finally started to feel almost human, my ankles and feet severely swelled.  I retained fluid like it was nobody’s business, to the tune of 12 lbs of weight gain in a month, followed by another 20 in two weeks.  I had preeclampsia, big time.  I was put on bed rest, and just as I settled into a twice weekly doctor’s appointment, my blood pressure spiked.  I delivered my son, with an hour and a half notice, by emergency c-section at 25 weeks 1 day.  I spent a week in the hospital post surgery, as my blood pressure was impossible to regulate.  I will likely spend the rest of my life on some sort of blood pressure medication.

We got lucky.  My son spent 104 days in the Nicu, and two years later is a completely normal toddler, with two scars, one of which he examines daily.  He is literally one in a million.  25 weekers usually have all kinds of problems.  Plus he was a transport baby, and transporting these fragile neonates is almost a guarantee for brain bleeds.  Somehow, he made it through all of that, no brain bleeds, no abnormalities, no issues minus the standard that comes with preemies.

So, he’s two now.  My husband and I have decided that due to the complications I had, that attempting to have another child is a terrible idea.  I won’t put another baby through what our son went through, nor do I frankly want to do that again.  Plus, we got really lucky.  There’s no telling how things would go if we tested our luck again.  Adoption is ridiculously expensive.  Adoption is more than my husband and I make in a year combined, expensive.  So, our son will be an only child.  I’ve considered fostering, but I want him to be old enough to understand, and even then, my husband has to get on board, which he’s not yet. It’s seldom that I go a week without someone asking when we’re going to have more, or telling me that our son needs a little sister.  What’s shocking is these are people who were there.  They KNOW what we went through.

First, even the healthiest of babies is expensive.  Second, who’s going to take care of that child?  Not you?  You don’t get a say.  Third, having, or not having, a child is a deeply personal thought.  I will be the first to tell you that I desperately want a second child.  I so dearly miss that smell of newborn head, and the feeling of that tiny baby folding its body into you, maybe even some of the nighttime feedings, where it’s just you and the baby, without anything else but each other.  I’ve mostly forgotten the hell of pregnancy.  I know what happened, but I don’t remember what vomiting 5 times a day every day feels like anymore.  I remember the taste, but not what the taste tasted like.  I remember the fear.  I remember the fear deeply.  I remember the c-section being painful, but not what that pain actually felt like, and I know that I would have to have another one due to my classical incision.

My son will be an only child.  He will want for nothing, and be loved fiercely.  He will be encouraged to go out into the world and do great things, and will go to any college he wants.  I am not selfish, or a bad parent, or incomplete for only having one child.

Statistics are statistics, but just because you don’t follow them, in either direction (although I really wonder why anyone would want four or five kids) does not mean you’re less than.

Slowing down, while on steroids

This weekend, I came to fully understand why steroids are illegal in sports.  My husband was down with the plague this weekend, so it was me and the toddler…and steroids.  After spending about the last six weekends out of the house, the whole goal this weekend was to NOT leave, including groceries being picked up on Friday night.  The goal was met until Sunday afternoon when I realized that we had not a box and a half a sleeve of diapers, but only a half a sleeve.  After the toddler went down, I went to the local neighborhood Wal Mart (as opposed to a supercenter), picked up diapers and cold meds, and returned home.  I may have been gone 20 minutes.

Sunday, all laundry was washed and dried.  Minus what we wore as a family yesterday, every stitch of laundry in my house is clean and dry.  Now, it isn’t put up, but I am one person who was chasing a toddler all by myself.  This weekend, I made beef stew with barley on Saturday, some French toast breakfast casserole for breakfast Sunday, chicken and sausage gumbo for dinner, and sugar cookies with a homemade buttercream frosting.  Meanwhile, I proceeded to clean my house from top to bottom, minus laundry.  I washed doors.  I scrubbed floors.  I vacuumed, twice.  I cleaned out the refrigerator of last week’s leftovers.  I shampooed carpets.  Mind you, all of this is while having a very busy two year old in tow, who wanted to be played with a lot of the time.  My house is spotless (minus giant pile of laundry in the guest bedroom).  Spotless.  Now, today, he’s at home with my mom, so by 5:00 my house will look like toddler hell again, but so be it.

At about 7:00, I had to actually tell myself to start calming down.  The wheels of steroids were spinning so fast, time felt slow.  I fully dosed up on melatonin, hoping to calm the business of my mind and body.  Sleep was restless.  Plus, the husband left the bed at 1:00, unable to sleep, and moved to the couch.

Today, I took my last dose of steroids.  Time is moving painfully slow.  I’ve answered emails, made the husband a doctor’s appointment, checked in with Mr. ENFP, twice, worked on one boss’s getting out of jury duty (he has strep throat), assisted a temporarily handicapped second boss, read the highlights of the NY Times, and checked Facebook.  It’s 9:30 a.m.  I have never looked so forward to slowing down in my life.

But, with the slowing down of this weekend, it brought a new perspective into view.  Obviously, I can’t stay home all weekend every weekend.  It’s just not feasible.  But, in my steroid race, I found myself enjoying my toddler, playing with him, and having fun doing so.  I didn’t felt rushed, and he felt loved.  Also, without a full calendar, I didn’t feel as if playing with him, or not playing with him at a moment, that I was sacrificing one for the other.  The day just flowed.  It was blissful.  It didn’t matter that I didn’t shower until noon, after he went down for a nap.  I got all that I wanted to do done, all that needed to be done, done, and had time to actually enjoy the moment.  Despite having a sick husband, we had quality time together.  We were all at peace as a family, and enjoyed being around each other.  So, while we can’t relive this weekend every weekend, maybe a goal of once a month is in order.   Sometimes you have to slow down, savor the day, and play with the toddler.

The Downhill

As a very introverted introvert, holidays are rough.  There’s some divorces on my husband’s side of the family, so whatever split would normally be between the families, as far as numbers of meals to attend, double that.  Christmas is BY FAR the worst.  We got down to three of them this year, but with a toddler, everyone wants to give him all the stuff, and hug everyone, and touch everyone and tell you how cute he is, and then give you a hug.  I was told that Christmas dinner with my in-laws would be a quiet sedate event.  There was some drama that happened Christmas Eve night, which I won’t glorify here, which slimmed the crowd down.  Apparently that was license for my brother in law to invite his ENTIRE extended family – his entire, uneducated, jobless hillbilly family, who all want to hug and touch you and tell you how cute your kid is while talking about how wonderful Trump is.  It was a nightmare.  Today, I am touched out, hugged out, Trumped out, and tired.  It’s like I have a hangover, minus the headache.  I was exceedingly grumpy, and arrived to a nearly empty parking garage.  To add insult to injury, my dad has today off, so he’ll be babysitting my toddler with my mom.  Sounds great, right?  Wrong.  My dad is very much of the mindset that he is a guest when at my house.  There will be dishes and crap everywhere in addition to the onslaught of toddler toys when I get home.

Before you start thinking I’m a total scrooge, there is one SHINING positive of coming to work on December 26, when nobody else is at work – it’s quiet.  It’s solitary.  It feels like a bit of heaven.  Neither boss is here yet (one is in Washington State, I’ve heard nothing from the other), one of my cube mates is here, and will be quiet, the other one who is noisy is out with her kids today.  That quiet solitude that is seemingly hard to find, is in abundance at work, and is JUST what I needed.  Only the sounds of my typing, and the quiet hum of my heater are around me.  There is no chatter, no phones ringing, no television, no people hugging me.

One of my coworkers is a very extroverted ENTJ.  We get along well, especially as neither one of us are frilly soft folks, but she just does not understand my feeling of peopled out, and only minimally liking to be touched. Mr. ENFP looks at the opposite of that – i.e., I can relatively easily let people go.  He admittedly LOVES people, but then can’t seem to let them go.  I will happily take my peopled out state.  My husband reacts much in the same way I do, but he’s content to be just with me after the escape from all of the people.  I need solitude.  He also wants to cuddle, which is fine almost any other day of the year.  Yesterday (and frankly today), I don’t even want to hold hands.

This weekend, I have a day at the spa, courtesy of one of my bosses, and beyond grocery shopping, have zero plans of leaving my house.  It will be glorious.  I’ve been asked before how to find an INTJ, or another thinking intuitive introvert.  I have to give credit to those who do, especially past college age.  It has to be something really special to encourage us to come outside of our homes willingly.  And it can’t be a large crowd, or we’ll shut down and bolt quickly.  So, for all of the holidayed out introverts, we survived.  And luckily, we only have to do this a few times a year.  Enjoy the quiet touch-free solitude of your homes!  I certainly will.

Foreshadowing the world around us

So there was this neurosurgeon in NYC who was 36 (ish) and was diagnosed with lung cancer. He did a series in The NY Times, and he was just a few months ahead of my dad disease/treatment wise. Never smoker, generally boring as far as health was concerned, minus lung cancer at 36 (admittedly, I haven’t gone back to fact check myself.  He may have died at 36). He beat it into remission like my dad. At a very low point, his possibility gave me a lot of hope. I even tracked him down and emailed him at one point (the Times made it easy). I did not get a response back. Anyway, I knew his cancer had come back at some point, and he died about two years ago. I was devastated. I cried my eyes out over a man I’d never met or even talked to. Their path, except for age, has been remarkably similar.

Yesterday, there was some puff column in the Times by a lady who I believe knew him, who now also has lung cancer and who is also a doctor. It brings all of those feelings to the surface, and I can’t help but have this underlying feeling that it’s foreshadowing what is coming. I called my dad just before noon yesterday. He still wasn’t out of bed. He is every bit the morning person that I am, maybe more so. He also sounds depressed. He’s not angry anymore, just sad. He hasn’t said so, but you can tell. Cancer is merciful in that you usually get a chance to wrap things up and say goodbye, which a heart attack won’t give you, but in some ways, the heart attack is so much kinder. Knowing that death is coming and waiting on it is awful. And frankly that’s what we are doing; waiting on death.

The oncologist appointment wasn’t as bad as I thought it would be, but rather than delivering all of the bad news at once, I think we are getting it in moderate doses.  Wednesday, my dad went to the emergency room with shortness of breath (lung cancer).  The ER did a chest x ray, followed by a CT, and decided there was nothing they could do for him.  They weren’t telling us “hey, man, your whole left side is cancer, and you have no use of that left lung,” but they alluded to it, and made my parents promise that they would go to the oncologist Friday, while sending my dad home with antibiotics and steroids.  Friday, the oncologist looked at the CT with us.  While there is probably a good bit of fluid in there, there is also a lot of tumor.  A normal CT of the chest cavity is basically black.  Save a few white spots, on the right, my dad’s is.  On the left, however, it’s solid white.  As you go through the CT itself, you can see where some of the white is tumor and some of the white is fluid, but basically, he might as well not have a left lung.  He was due to have chemo this past Friday, which the oncologist delayed, in lieu of having a pet scan Tuesday.

Aside from the non functioning left lung, we also came away with a diagnosis of right heart failure.  We’ve gone looking for it several times, and the oncologist admitted that in the past, his echos have just been difficult to read.  This time, it wasn’t.  Also, we’re pretty positive the tumor is pressing on his laryngeal nerve, which basically paralyzes his voice.  He can talk, sort of, but he’s very hard to understand unless a room is absolutely silent.  The one positive of all of this, is his brain MRI was clear.  So, he may not be able to breathe, but he can think.  That, in my opinion, is a mixed blessing.

So Friday, we will see the pet scan results, which will surely be awful.  I feel like after Friday, we will enter hospice, but we may not.  Preparations for his retirement which is surely imminent, are being made.  All the while, next weekend we will celebrate my niece being done with chemo, which truly is a celebration.  The diagnosis of leukemia in a 6 year old is horrible, and she has completely earned her celebration.  But, it’ll be two days after what I am expecting to be devastating news regarding my dad.  That circle of life is a bitch.

Sometimes I just see the relationship in things that may have nothing to do with each other.  Why did the NY Times publish that column on that day, and make sure I saw it?  Who knows.  But it did, and I did, and I can’t help but feel the relationship of what is likely coming down my path.  Hopefully he makes it past Christmas.

Cancer Cancer Everywhere

My dad has been battling lung cancer, as a non smoker, for nearly four years.  December 23, will mark exactly four years.  We have been through the roller coaster, despite being given a grim diagnosis four years ago, and even had some time of remission.  The cancer came back this spring, with a vengeance, and after three months on Opdivo, spread like wild fire.  Unfortunately, one of the most common sites for lung cancer metastasis is the brain.  Something like 70% of all lung cancer patients will have brain mets at some point or another.  Ideally, it’ll be one tumor, and the patient will be strong enough to be able to under go surgery to remove the tumor, but most of the time, they’ve smoked for 40 years and have COPD or emphysema, or are like my dad, and are so riddled with cancer, that surgically removing anything comes with huge huge risk, and is unlikely to be successful.  For several weeks now, there has been a push to talk to the oncologist about the fairly sudden loss of memory.  For several weeks, it’s been largely ignored, until my father decided it couldn’t be ignored anymore.  He claims to have been having a hard time getting the oncologist to listen to him.  After this morning’s appointment, I feel more like it’s that he’s had a hard time telling the oncologist what’s going on.

Dutiful bossy daughter I am, and I dutifully traveled to the oncologist’s office as requested, and dutifully and boldly described my father’s sudden memory loss – loss of how to do a procedure he’s done at work for 20 years, loss of words mid sentence, loss of whole sentences, forgetfulness that is more than forgetfulness.  The oncologist immediately made a face, giving away probably exactly what is going on, which is what we all suspect is going on. He peppered me with questions.  My dad reacted with obvious fear.  So, an MRI will be scheduled.  I expect next Friday we will be faced with terrible news.

Admittedly, I’ve been a bit mopey all day.  My shoulders hurt.  My teeth hurt.  I’ve been fairly introspective.  I’ve talked to my mother in law.  I’ve talked to my husband.  I’ve talked to Mr. ENFP (about everything but this; although he knows too).  I’ve told both bosses and several co-workers.  I’ve eaten way too much, not drank enough water, and floated things off with too much coffee.  I feel kind of like I’m surviving today, but just.  What comes with a possible spread of cancer to his brain is big.  Very big.  My father works as a bench chemist in an oil refinery.  Cancer spreading to the brain is a liability for everyone, himself and the company.  It will push him into retirement – which luckily he just celebrated his 65th birthday.  But, with that, a man who identifies himself by what he does and where he works, will suddenly be without an identity.  Working in law, the first question one boss asked was what kind of disability policy he has.  It’s natural for us to automatically go to the practical (when my dad was diagnosed, my immediate concern was that wills, living wills, and powers of attorney were updated). Mr. ENFP and I have talked on occasion about how the biggest thing I can do is have a new identity and life set up for him and ready to go when forced retirement comes.  Once my mom is healed, that’ll involve babysitting his grandson who he wants to know well.  But, how do you take something someone has done for his whole adult life, and say to him that you can’t do that anymore?  How do you help them move on from that?  This isn’t retirement. I mean, it is in the sense that he’ll be retired, but this isn’t a decision to age out and move on to the calm waters of not pulling the 8-5 day.  This is forced benching.  Culling the weak.  Already he’s been removed from the call list for work if a strike happens (union contracts are being negotiated).  Yesterday, he said he was glad, but you can hear that momentary pause of knowing he’s being benched, little by little.  His prime has passed.

I’m sad for me, knowing that the loss of my father is edging closer and closer, but mostly I’m sorry for my dad.  I know what’s coming.  While I don’t know how devastating it will feel at that moment for him, I know it will be devastating.  We’re coming up on Thanksgiving and Christmas.  A full social calendar will be quiet for him.  I worry about him feeling forgotten.

And with all this, my reaction is so quintessentially me.  I’m forever seeking a solution to a problem and maneuvering 5 steps ahead so that when faced with the problem in reality, I know exactly what to do.  But likewise, I have all of this emotion just waiting to surface.  I don’t ignore that emotion, but rather push pause.  It’s not time for that.  It’s time to make sure the path is laid for my father.  It’s time to make sure that all that can be done is, so that when his world crashes down, he’ll land on soft grass.  But someday, all that emotion has to go somewhere.  Logically, I know that we have less time than more.  At some point the critical mass of cancer to organs will be reached, and the cancer will win out, chemo or no chemo.  I have no doubt that that balance is close.  But when it comes, who knows whether it’ll be swift or slow.

Cancer cancer everywhere.  Cancer shows no mercy.  It doesn’t care if you’re fat or thin, smart or dumb, young or old.  It doesn’t care what you have left to accomplish, or how accomplished you already are.  Cancer sucks.